Friday, March 29, 2013

11 Months OT!

Despite this latest hiccup, Georgia is standing tall and living STRONG - 11 months off treatment! Before we know it, we'll be marking one year by moving her clinic appointments to every two months. Settling in to the old normal more and more every day. And we are so thankful!

 Going to 11!

Also coming up three months from tomorrow is the 2013 46 Mommas Shave for the Brave in San Antonio! We'll be raising awareness, funds, and hope at the Arneson River Theatre on Sunday, June 30th from 12-4. More details to come, but you can get an idea of the power of this event in this video of the 2012 shave in Los Angeles. You might recognize my mohawk and catch of glimpse of Georgia's picture ...

46 Mommas Shave for the Brave {2012} from 46 Mommas on Vimeo.

Sunday, March 24, 2013

Dem Bones

Yesterday, we went to the always fun, always successful St. Baldrick's event at Dell Children's. We had several friends shaving for the brave, and we also go to catch up with old friends we don't see as often at the clinic - kind of a reunion of sorts. It's a good thing that they're moving on and away from treatment, but it's always nice to see how everyone's doing and catch up. There were delicious cupcakes from the fabulous Becky and Bountiful, music and games, and - Ivy's favorite - the miniature horses from Minis and Friends. At last count, the fundraising total for the event was over $100K! An afternoon well-spent, indeed!

We put our handprints on the Hope-Strength-ATX sign from ColorCancer.

The Batmobile was there, too!

The report from Georgia's clinic appointment on Wednesday was mixed: strong counts; weak bones. The bone density scan confirmed that she has osteoperosis. While we don't necessarily have to suit her up in bubblewrap, we do have to address and treat this as soon as possible to avoid any further damage or fractures. Next stop is endocrinology and a thorough look at her hormone levels, and then we should be able to put together a plan in addition to just boosting her Vitamin D level. Weight-bearing exercise is a great way to build your bones, so we're looking at getting an elliptical machine for her to try, and, as always, she'll just keep swimming.

While we're not really surprised by the diagnosis, it's still a glaring reminder of the cost of treatment. Steroids and chemotherapy are necessary evils, and we're so thankful that of all the possible effects Georgia could be dealing with, this is one that we can do something about, to some extent. But I have to believe that there's a better way to treat and cure these children. Dr. Neff said it was his fault that Georgia's bones are weak, and I said it was also his "fault" that her leukemia is gone, so I think we'll call it even.

Sunday, March 17, 2013

Go Big Green

Happy St. Patrick's Day! Pulling out the green today always reminds me of our amazing friends at the St. Baldrick's Foundation - March is traditionally the biggest month for shave events since the very first shave took place on March 17, 2000. Interesting that St. Baldrick's and Georgia are the same age ...

Just since January 1st, a mighty bald army has raised over $17 million for childhood cancer research - one dome, one dollar at a time. And on April 7th, St. Baldrick's will announce the first pediatric cancer DREAM TEAM under its partnership with Stand Up To Cancer. The team will receive a 4-year, $14.5 million research grant and was selected based on its ability "to make the biggest impact — not just more knowledge about cancers, but new treatments to help more children survive to live healthy lives." This is such an exciting prospect and one of the many reasons why we support St. Baldrick's and its concerted efforts to fill the funding gap for childhood cancer research.

Share some luck o' the Irish with kids in the fight, and help give them 
the best possible chance for cures and for long, healthy lives.

Thursday, March 14, 2013

Hittin' The Trail

The camping trip was a great success! We went to Palmetto State Park and enjoyed lots of hiking, paddleboating, and excellent campfire food (thanks to Daddy!). The best part was when Georgia remarked that all of that activity didn't bother her ankle one bit. Yes!

Come and Take It!

Camp Sweet Camp

 The Palmetto Trail

Georgia had the long-awaited bone density scan today - quick and easy - and we should get the results by her clinic appointment next week, if not before. Also, we want y'all to know that our awesome friend, Will, is taking on yet another race in honor of Georgia, the Wounded Warrior Half Marathon, in June! This will be his Triple Crown event, which means he will have completed a cycling event, a triathlon, and a running event with Team in Training - and, including Dianna's efforts, raised over $23,000 for the fight against blood cancers! He's almost halfway to his goal, so head on over to his fundraising page and share that awesome Friends of Georgia support! Thanks, y'all!

Saturday, March 9, 2013

Taking a (Spring) Break

We're set to brave the elements for a few days of camping, so I'll leave you with this picture of The Teenager just looking all teenagery. Have a great week!

Saturday, March 2, 2013

10 Months OT!

So even though February didn't have a 29th this year, we're marking Georgia's 10th month off of treatment anyway! The report from her follow-up with Dr. Murdock this week was great - her ankle is healing nicely, and she can ditch the boot for good. The blood work showed that her calcium level was normal, but (like many folks these days) she's a little low in Vitamin D, easily remedied with a supplement. Because she could still have bone loss despite the normal calcium level, he agreed that a bone density scan is a good idea. We'll knock that out over Spring Break, which is almost here!

Also on the horizon for our local friends and family is Amplify Austin! This charitable giving campaign aims to raise $1 million in 24 hours in support of over 300 Central Texas nonprofit organizations, including several of our favorites: the Ann Richards School for Young Women Leaders, Dell Children's Medical Center Foundation, and the Central Texas Blood and Tissue Center. Click here from 7 pm Monday, March 4th to 7 pm Tuesday, March 5th to make a donation and make a difference. Thanks, y'all, and Happy Texas Independence Day!